Implementing a Nordic-Baltic Federated Health Data Network: a case report

作     者：Chomutare, Taridzo Babic, Aleksandar Peltonen, Laura-Maria Elunurm, Silja Lundberg, Peter Jönsson, Arne Eneling, Emma Gerstenberger, Ciprian-Virgil Siggaard, Troels Kolde, Raivo Jerdhaf, Oskar Hansson, Martin Makhlysheva, Alexandra Muzny, Miroslav Ylipää, Erik Brunak, Søren Dalianis, Hercules 

作者机构：Health Data Analytics Norwegian Centre for E-health Research Tromsø Norway Department of Computer Science UiT The Arctic University of Norway Tromsø Norway Group Research and Development DNV Høvik1322 Norway Department of Health and Social Management University of Eastern Finland and Wellbeing services county of North Savo Kuopio Finland Department of Nursing Science University of Turku and Research Services Wellbeing Services County of Southwest Turku Finland Institute of Computer Science University of Tartu Tartu Estonia Department of Radiation Physics Department of Medical and Health Sciences Linköping University Linköping Sweden  Linköping University Linköping Sweden Novo Nordisk Foundation Center for Protein Research Faculty of Health and Medical Sciences University of Copenhagen Copenhagen Denmark  Stockholm University Stockholm Sweden Institute of Family Medicine and Public Health University of Tartu Tartu Estonia Department of Computer and Information Science Linköping University Linköping Sweden 

出 版 物：《arXiv》 (arXiv)

年 卷 期：2024年

核心收录：

主　　题：Electronic health record 

摘      要：Background: Centralized collection and processing of healthcare data across national borders pose significant challenges, including privacy concerns, data heterogeneity and legal barriers. To address some of these challenges, we formed an interdisciplinary consortium to develop a federated health data network, comprised of six institutions across five countries, to facilitate Nordic-Baltic cooperation on secondary use of health data. The objective of this report is to offer early insights into our experiences developing this network. Methods: We used a mixed-method approach, combining both experimental design and implementation science to evaluate the factors affecting the implementation of our network. Results: Technically, our experiments indicate that the network functions without significant performance degradation compared to centralized simulation. Conclusion: While use of interdisciplinary approaches holds a potential to solve challenges associated with establishing such collaborative networks, our findings turn the spotlight on the uncertain regulatory landscape playing catch up and the significant operational costs. Copyright © 2024, The Authors. All rights reserved.