Qualitative cancer genetic counseling research, part I: Ethnography in a cancer clinic

作     者：Peters, June A. McAllister, Carol L. Rubinstein, Wendy S. 

作者机构：Department of Human Genetics Graduate School of Public Health University of Pittsburgh Cancer Genetics Program Clinical Genetics Branch Division of Cancer Epidemiology and Genetics National Cancer Institute Rockville MD United States Department of Human Services Administration Graduate School of Public Health (GSPH) University of Pittsburgh Pittsburgh PA United States Departments of Medicine and Obstetrics-Gynecology and Reproductive Sciences School of Medicine University of Pittsburgh Pittsburgh PA United States Department of Human Genetics Graduate School of Public Health University of Pittsburgh Pittsburgh PA United States Cancer Genetics Program Pittsburgh PA United States Clinical Genetics Branch (CGB) Division of Cancer Epidemiology and Genetics (DCEG) National Cancer Institute (NCI) Rockville MD 20852 6120 Executive Blvd. United States 

出 版 物：《Journal of Genetic Counseling》 (J. Genet. Couns.)

年 卷 期：2001年第10卷第2期

页      面：133-150页

学科分类：0710[理学-生物学] 0402[教育学-心理学(可授教育学、理学学位）] 04[教育学] 1002[医学-临床医学] 1001[医学-基础医学(可授医学、理学学位)] 

基　　金：Cancer Genetics Program MWH MWH/UPCI/UPMC Magee-Womens Hospital Medical Center, University of Pittsburgh University of Pittsburgh Cancer Institute, University of Pittsburgh UPMC Enterprises 

主　　题：Anthropology Behavioral Ethnography Family Genetic counseling Hereditary cancer Participant-observation Psychosocial Qualitative Research 

摘      要：This is a report of the experience of several months ethnographic research by a genetic counselor researcher in a cancer treatment clinic. One goal of the exercise was to directly experience a method of qualitative research known as ethnography, which relies heavily on participant-observation, in an applied clinical setting. Another goal was to explore a previously undescribed research area in the genetic counseling literature, namely, the meaning of cancer and cancer treatment for affected individuals and their support companions. Here we report on a personal account of the experiences of conducting and publishing the research. The preliminary analysis and results of this field experience are published elsewhere (Peters et al. (2007) J Genet Counsel 10(2):151-168.). These initial findings support the feasibility of genetic counselors, who are trained in specific social science methodologies, to conduct qualitative research pertinent to genetic counseling practice. © 2001 National Society of Genetic Counselors, Inc.