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作者机构:Penn State Univ Coll Med Dept Humanities University Pk PA 16802 USA Penn State Univ Coll Med Dept Surg University Pk PA 16802 USA Penn State Univ Coll Med Dept Med University Pk PA 16802 USA
出 版 物:《JOURNAL OF THE NATIONAL MEDICAL ASSOCIATION》 (全国医学会志)
年 卷 期:2015年第107卷第1期
页 面:26-32页
核心收录:
基 金:NIH National Institute of Nursing Research [1R21NR008539] Penn State University (Social Science Research Institute. Woodward Endowment for Medical Science Education, and Tobacco Settlement Fund Award)
主 题:advance core planning advance directive computer program decision support
摘 要:Background: For various cultural and historical reasons, African Americans are less likely than Caucasians to engage in advance care planning (ACP) for healthcare decisions. Purpose: This pilot study tested whether an interactive computer program could help overcome barriers to effective ACP among African Americans. Methods: African American adults were recruited from traditionally Black churches to complete an interactive computer program on ACP, pre-/post-questionnaires, and a follow-up phone interview. Results: Eighteen adults (mean age =53.2 years, 83% female) completed the program without any problems. Knowledge about ACP significantly increased following the computer intervention (44.9% 61.3%, p=0.0004), as did individuals sense of self-determination. Participants were highly satisfied with the ACP process (9.4:1 = not at all satisfied, 10 = extremely satisfied), and reported that the computer-generated advance directive accurately reflected their wishes (6.4;1 = not at all accurate, 7 = extremely accurate). Follow-up phone interviews found that 80% of participants reported having shared their advance directives with family members and spokespeople. Conclusion: Preliminary evidence suggests that an interactive computer program can help African Americans engage in effective advance care planning, including creating an accurate advance directive document that will be shared with loved ones.